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Wednesday, August 5, 2020 | History

11 edition of The ethics and regulation of human genetic databases found in the catalog.

The ethics and regulation of human genetic databases

The ethics and regulation of human genetic databases

global perspectives

  • 268 Want to read
  • 19 Currently reading

Published by Ashgate Pub. Ltd. in Aldershot, England, Burlington, VT .
Written in English

    Subjects:
  • Human genetics -- Databases -- Moral and ethical aspects,
  • Human genetics -- Databases -- Law and legislation,
  • Genome, Human,
  • Confidentiality,
  • Databases, Genetic -- ethics,
  • Databases, Genetic -- legislation & jurisprudence,
  • Genetic Research -- ethics,
  • Genetics, Population -- ethics

  • Edition Notes

    Includes bibliographical references and index.

    Statementedited pby Bernice Elger ... [et al.].
    ContributionsElger, Bernice.
    Classifications
    LC ClassificationsQH438.7 .E836 2008
    The Physical Object
    Paginationp. ;
    ID Numbers
    Open LibraryOL16773485M
    ISBN 100754672557
    ISBN 109780754672555
    LC Control Number2008003427

    Purpose To characterize ethical, legal, and social issues unique to population genetic database research and to determine the relevance of international recommendations and guidelines for. The Human Genome Organisation’s Committee on Ethics, Law and Society (CELS) is a mechanism for HUGO to proactively initiate and facilitate dialogues on the ethical, legal and social issues related to genetics and genomics and the potential for utilisation of these for the good of the individual and society.

    The fact that our private genetic information is often times out of our personal control, combined with the lack of adequate safeguards to ensure the privacy of this information by those who do control it, greatly increases these concerns. Genetic databases, (3) biobanks, (4) and population collections (5) are already here, most probably to stay.   The study on the genetics behind “antisocial personality disorder” is the closest investigation I’ve found to comparing general population and forensic DNA databases. The researchers.

    From early on, deCODE set high ethical and privacy standards that meet or exceed European Union regulations for human research, under the scrutiny of a . The amazing power of CRISPR-Cas9 gene editing tools and other related technologies has impacted all areas of biology today. It has also raised ethical concerns, particularly with regard to the possibility of generating heritable changes in the human genome – so-called germline gene editing. Although technical and safety issues suggest that this approach is far from clinical .


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The ethics and regulation of human genetic databases Download PDF EPUB FB2

Human genetic databases raise many ethical, legal and social questions. In this book, first published inbioethics scholars examine whether existing ethical frameworks and social policies adequately reflect people's concerns, and how these frameworks and policies may need to change in light of new scientific and technological by:   Alexander M.

Capron, University of Southern California, USA 'Bernice Elger provides a solid basis for better informed discussion on the ethical issues of genetic databases: a well structured analysis of diverse national legislation and regulation, a critical comparison of international guidelines, showing their imperfections and inconsistencies and a stimulating presentation of the ethical by:   The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines.

The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics. The research presented in this book wasconducted within the project ‘Ethical, Legal and Social Aspects of Human Genetic Databases: A European Comparison’, funded by the European Commission’s 5th Framework Programme (QLG6-CT).

MATTI HA¨ YRYis Professor of Bioethics and Philosophy of Law at the University of Manchester. moral values in the context of human genetic databases.

The research presented in this book was conducted within the project ‘Ethical, Legal and Social Aspects of Human Genetic Databases: A European Comparison’, funded by the European Commission’s 5th Framework Programme (QLG6-CT).

The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.

CLICK HERE FOR MEDICAL BOOKS FREE DOWNLOAD FOR THOSE MEMBERS WITH BLOCKED DOWNLOAD LINKS. The Ethics and Governance of Human Genetic Databases Genetics.

Jan 10 The Medical Biobank of Umeå in Sweden, deCODE’s Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic. This book is the latest offering from Bernice Elger, who has written extensively on the ethical and regulatory issues surrounding human genetic databases.

Read the full-text online edition of Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics. Home» Browse» Books» Book details, Ethical Issues of Human Genetic Databases: A. International Standard Book Number XXXXX-X ethics and regulation.

He noted have led the effort to develop responsible, comprehensive policies for many emerging and controversial areas of genetics and cell biology, such as human embryonic stem cell research, human cloning, and.

Governance of population genetic databases: a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C.

Gibbons -- The legal jigsaw governing population genetic databases: concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Pt. Ethical questions -- The Ethics and Governance of Human Databases is a very worthy book which addresses issues that are opening up every day - sometimes under our feet.' Law and Politics Book Review 'The book presents a truly interdisciplinary investigation containing, as it does, input from disciplines of philosophy, law and sociology.

Abram, Morris B, "Splicing Life: A Report on the Social and Ethical Issues of Genetic Engineering with Human Beings.," Nov: p. Keywords: ethics, biotechnology, behavior Abrams, Jim, "Genetics Research Poses Major Threat of Discrimination, Experts Say," Associated Press.

Oct The governance of research and clinical trials using human genome editing is expected to draw on the foundation of international and national regulations, policies, and guidance that apply to other areas of clinical research and development, including other types of genetic technologies, stem cells, reproductive medicine, and research involving human embryos.

The database includes only single gene alterations (it does not include contiguous gene syndromes, although some conditions with, for example, digenic inheritance are included), and does not include genetic associations or susceptibility factors related to more complex diseases, such as identified through association-based studies.

ISBN: X: OCLC Number: Description: xi, pages ; 24 cm: Contents: Introduction: some lessons of ELSAGEN / Vilhjálmur Árnason --On human genetic databases / Gardar Árnason --American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and.

ELSI Genetics Regulation Database Search results: AFRO. REPRODUCTIVE BIOLOGY AND GENETIC RESEARCH (BOOK 2) GUIDELINES ON ETHICS FOR MEDICAL RESEARCH: REPRODUCTIVE BIOLOGY AND GENETIC RESEARCH.

One recent study concludes that although almost 90% of participants in an NIH-funded genetics research were willing to allow the submission of their data in de-identified form to dbGaP, the database of genotypes and phenotypes at NIH (dbGaP, n.

d), over two-thirds of them also wanted the researchers to ask their permission (Ludman et al., ). African Studies American Studies Ancient Near East and Egypt Art History Asian Studies Book History and Cartography Biblical Studies Classical Studies Education.

With an increase of logistical complexity in the process of acquiring biological material, generating genetic and genomic information, sharing and distributing of results, and internationalization of research, the ethical check points and regulations of the above mentioned activities have also become more complex.

elsi genetics regulation database search results: genetic testing. commission communication in the framework of the implementation of directive 98/79/ec of the european parliament and of the council of 27 october on ‘in vitro diagnostic medical devices’.Documents.

Download as Adobe PDF. Rights statement: © Porter, G. ().The Regulation of Human Genetic Databases in Japan. SCRIPTed, 1, /scripAdvances in DNA technology and the discovery of DNA polymorphisms have permitted the creation of DNA databases of individuals for the purpose of criminal investigation.

Many ethical and legal problems arise in the preparation of a DNA database, and these problems are especially important when one analyses the legal regulations on the subject.